Patient Related Outcome Measures: 2023, vol: 14, issue:
1)- Alvaro Gomez, Yvonne Enman, Ioannis Parodis. Impact of Belimumab on Patient-Reported Outcomes in Systemic Lupus Erythematosus: Insights from Clinical Trials and Real-World Evidence.Patient related outcome measures. 2023, 14: 1-13
2)- Rachel Campbell, Madeleine T King, Martin R Stockler, Yeh Chen Lee, Felicia T Roncolato, Michael L Friedlander. Patient-Reported Outcomes in Ovarian Cancer: Facilitating and Enhancing the Reporting of Symptoms, Adverse Events, and Subjective Benefit of Treatment in Clinical Trials and Clinical Practice.Patient related outcome measures. 2023, 14: 111-126
5)- Lilla A Brody, Lily Kamalyan, Kayle Karcher, Lesley A Guarena, Alexis A Bender, Benjamin S McKenna, Anya Umlauf, Donald Franklin, Maria J Marquine, Robert K Heaton. NIH Toolbox Emotion Battery Findings Among People with HIV: Normative Comparisons and Clinical Associations.Patient related outcome measures. 2023, 14: 15-30
6)- Avery A Rizio, Michelle K White, Anita D'Souza, Kristen Hsu, Paula Schmitt, Tiffany P Quock, James Signorovitch, Isabelle Lousada, Vaishali Sanchorawala. Health-Related Quality of Life Instruments for Clinical Trials in AL Amyloidosis: Report from the Amyloidosis Forum HRQOL Working Group.Patient related outcome measures. 2023, 14: 153-169
7)- Timothy Beukelman, Millie D Long, Rennie L Rhee, Michael D Kappelman, Peter A Merkel, William Benjamin Nowell, Cassie Clinton, Sarah Ringold, Vincent Del Gaizo, Brian Price, Dianne G Shaw, Shilpa Venkatachalam, David Cuthbertson, Fenglong Xie, Xian Zhang, Jeffrey R Curtis. Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks.Patient related outcome measures. 2023, 14: 171-180
9)- Lidwine B Mokkink, Iris Eekhout, Maarten Boers, Cees P M van der Vleuten, Henrica C W de Vet. Studies on Reliability and Measurement Error of Measurements in Medicine - From Design to Statistics Explained for Medical Researchers.Patient related outcome measures. 2023, 14: 193-212
10)- Meaghan O'Connor, Kristen Hsu, Lynne Broderick, Kristen L McCausland, Kaitlin LaGasse, Sabrina Rebello, Michelle Carty, Isabelle Lousada. The Transthyretin Amyloidosis - Quality of Life (ATTR-QOL) Questionnaire: Development of a Conceptual Model and Disease-Specific Patient-Reported Outcome Measure.Patient related outcome measures. 2023, 14: 213-222
11)- Lotte van der Kolk, Ellen Smit, Josée Bloemer, Lise Marit van Wijk. The PCQ-Infertility Revised: A New Digital Instrument to Measure Treatment Satisfaction of Fertility Patients.Patient related outcome measures. 2023, 14: 223-234
12)- Pål André Hegland, Ronette L Kolotkin, John Roger Andersen. Sensitivity for Change Analyses of the Patient-Reported Outcomes in Obesity (PROS) Questionnaire: A Prospective Cohort Study.Patient related outcome measures. 2023, 14: 235-241
13)- Betelhem Mesfin, Alexander Mersha Demise, Mullu Shiferaw, Freweyni Gebreegziabher, Fentaw Girmaw. The Effect of Armed Conflict on Treatment Interruption, Its Outcome and Associated Factors Among Chronic Disease Patients in North East, Amhara, Ethiopia, 2022.Patient related outcome measures. 2023, 14: 243-251
14)- Shanlian Hu, Depei Wu, Jing Wu, Yabing Zhang, Mette Bøgelund, Johannes Pöhlmann, Richard F Pollock. Disutilities Associated with Intravenous Iron Infusions: Results from a Time Trade-off Survey and Diminishing Marginal Utility Model for Treatment Attributes in China.Patient related outcome measures. 2023, 14: 253-267
15)- Kristine Henderson Bissenbakker, Anne Møller, Alexandra Brandt Ryborg Jønsson, John Brandt Brodersen. Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ).Patient related outcome measures. 2023, 14: 269-282
16)- . Erratum: Development and Validation of a Revised Instrument to Measure Burden of Long-Term Medicines Use: The Living with Medicines Questionnaire Version 3 [Corrigendum].Patient related outcome measures. 2023, 14: 283-284
17)- Christian Espinoza-Vinces, Rafael Villino-Rodríguez, Ainhoa Atorrasagasti-Villar, Gloria Martí-Andrés, María-Rosario Luquin. Impact of Safinamide on Patient-Reported Outcomes in Parkinson's Disease.Patient related outcome measures. 2023, 14: 285-295
18)- Avery A Rizio, Kristen L McCausland, Michelle K Carty, Ansgar Conrad, Tiffany P Quock. Association Between Hematologic Response and Change in Health-Related Quality of Life Among Patients with Light-Chain (AL) Amyloidosis.Patient related outcome measures. 2023, 14: 297-304
19)- Carlo Antozzi, Renato Mantegazza. Impact of Ravulizumab on Patient Outcomes and Quality of Life in Generalized Myasthenia Gravis.Patient related outcome measures. 2023, 14: 305-312
20)- Emma Grundtvig Gram, Jessica Á Rogvi, Anders Heiberg Agerbeck, Frederik Martiny, Anne Katrine Lykke Bie, John Brandt Brodersen. Methodological Quality of PROMs in Psychosocial Consequences of Colorectal Cancer Screening: A Systematic Review.Patient related outcome measures. 2023, 14: 31-47
21)- Michael Chladek, Claire Burbridge, Elizabeth Gibbons, Tom Willgoss, Janice Smith, Susanne Clinch. Qualitative Exploration in Exit Interviews of Changes Observed in Clinical Trials for Individuals with Autism Spectrum Disorder Without Intellectual Disability.Patient related outcome measures. 2023, 14: 313-335
22)- Susanne Clinch, Stacie Hudgens, Elizabeth Gibbons, Tom Willgoss, Janice Smith, Ela Polek, Claire Burbridge. Quantitative and Qualitative Exploration of Meaningful Change on the Vineland Adaptive Behavior Scales (Vineland™-II) in Children and Adolescents with Autism Without Intellectual Disability Following Participation in a Clinical Trial.Patient related outcome measures. 2023, 14: 337-354
23)- Lauren Nelson, Steven W Ing, Mishaela R Rubin, Jia Ma, Susan Martin, Rohini Sen, Olulade Ayodele. Psychometric Analysis of the Patient-Reported Hypoparathyroidism Symptom Diary Symptom Subscale Using Data from Two Clinical Trials.Patient related outcome measures. 2023, 14: 355-367
24)- Andrew Campbell, Avery A Rizio, Kristen L McCausland, Serban Iorga, Glorian P Yen, Jincy Paulose, Soyon Lee. The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children's Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises.Patient related outcome measures. 2023, 14: 369-381
25)- Nadeem Kassam, Philip B Adebayo, Iris Martin Matei, Eric Aghan, Samina Somji, Samwel Paul Kadelya, Yasson Abha, Frank Elton Swai, Mangaro Mabusi, Kamran Hameed, Hanifa Mbithe, Alyyah Thawer, Mandela Charles Makakala, Fatma Amirali Bakshi, Harrison Chuwa, Masolwa Ng'wanasayi, Casmir M Wambura, Robert Sostenes Mvungi, James Orwa, Munish Sharma, George Udeani, Salim Surani. The Pattern of Admission, Clinical Characteristics, and Outcomes Among Patients Admitted to the Intensive Care Unit of a Tertiary Hospital in Tanzania: A 5-Year Retrospective Review.Patient related outcome measures. 2023, 14: 383-392
26)- Alobo Jennifer Ogwang, Eric Baluku Murungi, Niyonzima Vallence, Beebwa Esther. Lived Experiences of Patients on Hemodialysis Treatment at Kiruddu National Referral Hospital: A Phenomenological Study.Patient related outcome measures. 2023, 14: 393-408
27)- Alebel Guangul Gessesse, Jemal Mohammed Haile, Amanuel Gebru Woldearegay. Exploring Effective Communication Strategies Employed by Physicians in Delivering Bad News in Ethiopian State Hospitals.Patient related outcome measures. 2023, 14: 409-425
28)- Clifford A Reilly, Makenna L Rice, Dylan J Parker, Philip P Goodney, Jon D Lurie, Said A Ibrahim, Eric R Henderson. Acceptability and Feasibility of Delivering Decision Aids to Veterans for Management of Knee Osteoarthritis - A Pilot Study.Patient related outcome measures. 2023, 14: 49-55
29)- Asif H Khan, Katherine Kosa, Lucia De Prado Gomez, Diane Whalley, Siddhesh Kamat, Marci Clark. Content Validation of Patient-Reported Sleep Measures and Development of a Conceptual Model of Sleep Disturbance in Patients with Moderate-to-Severe, Uncontrolled Asthma.Patient related outcome measures. 2023, 14: 57-71
30)- Nega Getachew Tegegne, Demeke Yilkal Fentie, Biresaw Ayen Tegegne, Belete Muluadam Admassie. Incidence and Predictors of Mortality Among Patients with Traumatic Brain Injury at University of Gondar Comprehensive Specialized Hospital, Northwest Ethiopia: A Retrospective Follow-Up Study.Patient related outcome measures. 2023, 14: 73-85
31)- Nadeem Kassam, Salim Surani, Kamran Hameed, Eric Aghan, Robert Mayenga, Iris Matei, Gijsberta Jengo, Fatma Bakshi, Hanifa Mbithe, James Orwa, George Udeani, Samina Somji. Magnitude, Distribution and Contextual Risk Enhancing Predictors of High 10-Year Cardiovascular Risk Among Diabetic Patients in Tanzania.Patient related outcome measures. 2023, 14: 87-96
32)- Nadine Maybaum, Salvador Rios-Martinez, Martin Johnson. Quantitative Global Survey Results of Acute Back Pain Sufferers Across Four Countries.Patient related outcome measures. 2023, 14: 97-110